Urgent Appeal: Help Anna #Escape#Abuse – Time is Running Out!
🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from #Abuse and #Neglect!
Anna, an Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with abusive family members. Bedbound and forced to stay in a dark room, she is vulnerable and that vulnerability is taken advantage of. She is not allowed access to #disability aids or workers and needs approval for all mailed items including food, which may be binned or sold regardless. There are no steady rules, just excuses for her abuse. She faces deliberate exposure to sensory overload, days without food, constant yelling, stolen belongings, and three #COVID infections in 15 months due to unmasked family members. She now has #LongCovid as well. Compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, and more - her health is deteriorating rapidly.
** Her doctor fears that staying in this environment will kill her.**
#Australia's #healthcare, #disability, and #domesticviolence systems have failed her catastrophically,. This systemic neglect has created a life-threatening crisis – and for Anna, it's already too late to wait.
Anna's Critical Needs – Your Support Can Save Her:
Safe Housing ASAP: Anna desperately needs a quiet room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week, with funded meals and limited care hours; long-term help may qualify for Carer's Allowance. She has indicated she may need incidental help.
Secure Relocation: Specialized transport to reduce infection risks and suit her ME. Funds needed for moving costs and aids until #NDIS access.
Expert Advocacy: A #DisabilityAdvocate for complex cases to navigate the system with her. Even a friend just willing to help. She can’t do this alone.
Communication Aid (#Australia, preferably #Victoria): Someone to handle phone tasks – all documents provided. Brain injury has made phone use impossible.
-This is a Shameful Failure – But You Can Help In a resource-rich nation, no one should rot in abuse while services ignore them. Don't let Anna become a statistic.
the figure on the manila anatomical bookmark is against a dark ink background. their body is colored in dark green-blue, with vibrant trans pride flag colors across their body diagonally, the white at their lower abdomen. Their face is drawn in extreme concern. A speech bubble shows them asking, "is there a less invasive option?" a drawing of a disembodied white coat,with jagged edges and allmost glitch-like shaking lines is before them. The white coat also has a speech bubble, and replies, "this is the less invasive option."
UK BMA and RCN ask Government to recognise Long COVID as an occupational disease
Unions representing Doctors and Nurses in the UK are asking the government to recognise the long term impacts of COVID-19 on health and care workers.
“The UK Government needs to act quickly and provide support now to the many doctors and nursing staff, and their families, who have suffered significant financial losses as a result of contracting COVID-19 in the workplace and then developing Long COVID.”
Hospital Guidance: Post-Exertional Malaise (PEM) - Care Requirements
CLINICAL WARNING: When the patient is in PEM, any extra activity (sitting up, walking, answering questions) can worsen symptoms, reset recovery, and accelerate long-term decline. Strict protection of rest is required.
Overnight Care Guidance
Lighting and Noise: Keep the room dark and silent overnight. Avoid unnecessary door openings. Use minimal light if checks are required.
Sleep Protection: Do not wake for routine observations unless clinically essential. Cluster any checks to reduce disturbance.
Environment: Ensure call bell, water, and medications are within reach before settling for the night.
Communication: Avoid questions or conversation if the patient wakes. Speak quietly and keep interactions minimal.
Escalation: If pain, tachycardia, or instability occurs, respond calmly, minimise sensory exposure, and escalate as clinically indicated.
Documentation: Overnight staff should record sleep protection strategies and PEM episode status at shift start and end.
Personal Care - Showering and Hygiene
Daily shower prompts are not required. Please be guided by the patient as to when capacity allows.
General Principle: Patient will indicate readiness for washing or showering. No need to prompt daily. Frequency: Showering may be limited to once a week or less during severe PEM. Over-exertion can worsen symptoms.
Alternatives: Patient may use wet wipes or gentle seated wash in lieu of shower as tolerated.
Please don’t give me contacts for domestic violence orgs. They don’t help disabled people with housing & only offer counselling. Also, that list of disability advocates going around for #Melbourne#Australia (where I am) is outdated - there aren’t any in my catchment. So I’m looking for volunteers with some background.
We set out to make our ‘invisible illness’ visible in South Africa with SICK Pride
"Those of us who are so severely disabled by ME and Long COVID that we are rarely able to leave our houses — or even our beds — suffer from an invisibility so total, most people are completely unaware of our
existence. We may not have strength in our bodies, but we certainly have
strength in numbers… We don’t have to be passive, when we are this
massive"
Now things are worse, I’m much sicker, being neglected and will die without a safe stable #home. Doctor’s words.
If not mentioned in the article, my father is a diagnosed narcissist with psychopathic & antisocial tendencies by a #psychiatrist. He urged me get away from my father asap because he is not a ‘safe person’ & neither are the other members who lured me back through the promise of help.
He truly isn’t but I have nowhere to go.
I’ve tried every level of government, every service and they simply won’t help.
Please ask people in real life if they have somewhere for me to go. Could they take me in (can pay small rent)?
Is anybody an #advocate? I desperately need help.
I would be incredibly grateful beyond words.🙏
(FYI the help services you may be searching for don’t help in my poor safe Labor catchment. All the services are divided into catchments & mine doesn’t count.)
USA News10 ABC Meet the Americans who still take COVID-19 precautions seriously
On clinically vulnerable patients (including an ME patient and a carer) shielding from Covid-19. Researcher Leonard Jason says trauma is part of the experience of chronic illness, and then there's additional traumatisation by the societal reaction to the illness. Researcher Akiko Iwasaki is also taking precautions and says: "I just can't afford to get sick and become chronically ill".
Please don’t give me contacts for domestic violence orgs. They don’t help disabled people with housing & only offer counselling. Also, that list of disability advocates going around for #Melbourne#Australia (where I am) is outdated - there aren’t any in my catchment. So I’m looking for volunteers with some background.
Finally got dr permission for IV magnesium. I don’t absorb it any other way so I am extremely deficient in it and ill. Can provide materials.
Problem is that I can’t find anyone to come out here in suburbia for less than $600 (check cost of wellness clinics in Melbourne. Expensive or don’t do at all. )
If you are a #nurse#phlebotomist#hcw or have any experience running a drip, please reply/DM. I don’t care if you learned it DIY as long as you know what you’re doing.
This treatment changes my life from bedridden to 60% of normal in a few months! That’s mildly ill in comparison.
It helps every symptom I have.
Hospitals only give it for preeclampsia. Hospital in the Home is the same. Private nurse services same.
It’s so basically going through proper channels doesn’t help.
It’s not illegal to have someone qualified come out and do it as long as doc has signed off on it which is why wellness clinics can do it. But medical system won’t. I know it doesn’t make sense but it’s Australia 2024. If you don’t have formal qualifications we can figure it out.
I’ve even asked the government for help. Nothing.
Was informed even private insurance wouldn’t help with this (I don’t have it ofc but this is an example of how hard and stupid this is.)
P-l-e-a-s-e post to other platforms. I have no team to help promote me I barely have any energy for basics . I have no energy to advertise. If you can help an team also let me know.
Please give me some quality of life.
I’m in #Melbourne#Australia.
If you’re willing to drive a distance will compensate for petrol and pay what you think is fair for your time.
TLDR: Need nurse or any qualified healthcare worker to come to my place to give magnesium IV.
Even consider unqualified if you know what you’re doing.