@halcionandon@aus.social avatar halcionandon , to MECFS group

Help me escape abuse & finally get out of here this 🎉🥳

Please help by hitting 🔄 BOOST , 📝QUOTE & 💸 GIVE if you can. Share on all social media platforms.

https://chuffed.org/project/161937-help-anna-escape

Urgent Appeal: Help Anna – Time is Running Out!

🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from and !

Anna, an Australian woman battling severe () for over 20 years, is trapped in a toxic home with abusive family members. Bedbound and forced to stay in a dark room, she is vulnerable and that vulnerability is taken advantage of. She is not allowed access to aids or workers and needs approval for all mailed items including food, which may be binned or sold regardless. There are no steady rules, just excuses for her abuse. She faces deliberate exposure to sensory overload, days without food, constant yelling, stolen belongings, and three infections in 15 months due to unmasked family members. She now has as well. Compounded by , , , , and more - her health is deteriorating rapidly.

** Her doctor fears that staying in this environment will kill her.**

's , , and systems have failed her catastrophically,. This systemic neglect has created a life-threatening crisis – and for Anna, it's already too late to wait.

Anna's Critical Needs – Your Support Can Save Her:

  • Safe Housing ASAP: Anna desperately needs a quiet room in a COVID-conscious (masking) home in . She can pay rent $250 per week, with funded meals and limited care hours; long-term help may qualify for Carer's Allowance. She has indicated she may need incidental help.

  • Secure Relocation: Specialized transport to reduce infection risks and suit her ME. Funds needed for moving costs and aids until access.

  • Expert Advocacy: A for complex cases to navigate the system with her. Even a friend just willing to help. She can’t do this alone.

  • Communication Aid (, preferably ): Someone to handle phone tasks – all documents provided. Brain injury has made phone use impossible.

-This is a Shameful Failure – But You Can Help In a resource-rich nation, no one should rot in abuse while services ignore them. Don't let Anna become a statistic.

Please , , or offer direct now!

If you can provide , , or calls, contact immediately at -

Halcionandon at gmail dot com

If Chuffed is not your thing, you can donate at:
BMaC- https://www.buymeacoffee.com/Halcionandon
Beem: Halcionandon

Thanks so much for reading. Please share!

Read more about Anna's story:
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/


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@tomkindlon@disabled.social avatar tomkindlon , to MECFS group

8-minute interview on Irish national radio

https://www.rte.ie/radio/radio1/clips/22527468/

While ME is discussed a bit, the focus is more on the issue of living in a care/nursing home

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@ahimsa_pdx@disabled.social avatar ahimsa_pdx , to MECFS group

💙 It's May 12th, International ME/CFS Awareness Day 💙

My ME/CFS onset was in Jan 1990

🚨 Many recent ME/CFS cases have been triggered by COVID 🚨

In this thread I plan to post about 3 main things:

  1. My ME/CFS story (briefly)

  2. Helpful resources for patients and clinicians

  3. Advocacy options for patients & allies (friends/family) - mostly US based

1/n

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ahimsa_pdx OP ,
@ahimsa_pdx@disabled.social avatar

What does mean?

Even mild cases of ME/CFS cause significant loss. People with ME are missing from jobs (part time work), social activities, and exercise.

Moderate cases cause more loss so they may rarely leave the house.

People with severe ME are stuck in bed. Some use eye shades & ear plugs to reduce sensory input.

As ME/CFS gets worse a patient's world shrinks.

Attached comic is by Kornelia Paulsen.

5/n

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  • @halcionandon@aus.social avatar halcionandon , to MECFS group

    PLEASE HELP ME ESCAPE!

    Please and share to other platforms.🙏I don’t have energy left.

    Seems I’m famous (and real!) and desperate enough to go to the media for help. Yes, the trapped woman in the articles below is me.

    Last year:
    https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/

    Now things are worse, I’m much sicker, being neglected and will die without a safe stable . Doctor’s words.

    If not mentioned in the article, my father is a diagnosed narcissist with psychopathic & antisocial tendencies by a . He urged me get away from my father asap because he is not a ‘safe person’ & neither are the other members who lured me back through the promise of help.
    He truly isn’t but I have nowhere to go.

    A year later:
    https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

    I’ve tried every level of government, every service and they simply won’t help.
    Please ask people in real life if they have somewhere for me to go. Could they take me in (can pay small rent)?
    Is anybody an ? I desperately need help.
    I would be incredibly grateful beyond words.🙏

    Please read articles for full information.

    Thank you for reading.


    @chronicillness @longcovid @neisvoid
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    @melbourne

    (FYI the help services you may be searching for don’t help in my poor safe Labor catchment. All the services are divided into catchments & mine doesn’t count.)

    halcionandon OP ,
    @halcionandon@aus.social avatar
    @tomkindlon@disabled.social avatar tomkindlon , to Disability group

    Unfortunately for some people with mobility issues, problems being upright () mean they can't use traditional or if they do, they can't be upright for long. This looks a interesting idea!

    Not sure the context!

    I found it here:
    https://www.tumblr.com/mathew/765339413020622848?source=share

    @chronicillness
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    @severeme

    @longcovid
    @dysautonomia @pots


    Somebody is lying in a bed in a powered mobility device