"We talked all about the causes or MS, the neurobiology, the early symptoms, treatments, the interventions that can slow down progression, new therapies that are on the horizon, the oftentimes agonizing journey to a diagnosis, and advice for those who've had MS for a while — or are newly in the community. Also yeah: weed."
Hey, its been a couple weeks, didnt get enough money the last couple weeks to make all my mutual aid goals, Would appreciate if i could get enough money this week, thank you for reading. I live in a transphobic and neglectful home, my family hates me and neglects me bc i am trans, nobody here respects my privacy or my basic autonomy, i need urgent funds to afford my basic necessities, please donate urgently.food: $0/$150misc expenses: $0/$250prescription glasses: $0/$250hrt blood tests: $0/$200paypal: https://paypal.me/redvelvetxxxcashapp: https://cash.app/vparagoncashapp referral (i make 5$): https://cash.app/app/QPL1BJFmonero address: 8576pqM8cmNW92eogjqnYzEewZbmwUbY61xRcGmbVCFphchaXKyAad1Xj9oNrYWQNqZkcm2kCHEzea4Y5Wd3DMUW4DozSV2@mutualaid@a.gup.pe @disability@a.gup.pe @trans@a.gup.pe#mutualaid #mutualaidrequest #donate #donation #fundraiser #crowdfunding #crowdfund #transmutualaid #transcrowdfund #queermutualaid #disabilitymutualaid #emergencycrowdfund #helpfolkslive2025 #begpost
For disabled people in the UK: you may have come across locked disabled toilets requiring a Radar Key. The keys are £6.50, including delivery, & there is no gatekeeping. If you consider yourself disabled you can get one.
"Following name proposal submissions from the community, the student housing project will be named the Judith E. Heumann House, after the disability rights advocate and Berkeley School of Public Health alumnus, according to Berkeley News on Thursday.
@disability Hi! It's kinda shameful to go this route , but being diabetic person .Now over 6 months my unemployment still pending This has been the worst couple of years of my life. Our house was destroyed in a storm. Then I am desperately in need for help. I need my insulin to bring my blood sugar back down. It’s $300 That’s all I need. I’m not asking for a windfall, just a little help, please.paypal.com/donate?hosted_butto
Can i please have enough to afford my miscellaneous expenses? (hrt, clothing, bills, etc) as well as some extra money for glasses? I live in a transphobic and neglectful home, my family hates me and neglects me bc i am trans, nobody here respects my privacy or my basic autonomy, i need urgent funds to afford my basic necessities, please donate urgently.food: $100/$100internet bill: $100/$100misc expenses: $95/$250prescription glasses: $0/$250hrt blood tests: $0/$200paypal: https://paypal.me/redvelvetxxxcashapp: https://cash.app/vparagoncashapp referral (i make 5$): https://cash.app/app/QPL1BJFmonero address: 8576pqM8cmNW92eogjqnYzEewZbmwUbY61xRcGmbVCFphchaXKyAad1Xj9oNrYWQNqZkcm2kCHEzea4Y5Wd3DMUW4DozSV2@mutualaid@a.gup.pe @disability@a.gup.pe @trans@a.gup.pe#mutualaid #mutualaidrequest #donate #donation #fundraiser #crowdfunding #crowdfund #transmutualaid #transcrowdfund #queermutualaid #disabilitymutualaid #emergencycrowdfund #helpfolkslive2025 #begpost
Can i please have enough to afford my miscellaneous expenses? (hrt, clothing, bills, etc) as well as some extra money for glasses? I live in a transphobic and neglectful home, my family hates me and neglects me bc i am trans, nobody here respects my privacy or my basic autonomy, i need urgent funds to afford my basic necessities, please donate urgently.food: $100/$100internet bill: $100/$100misc expenses: $95/$250prescription glasses: $0/$250hrt blood tests: $0/$200paypal: https://paypal.me/redvelvetxxxcashapp: https://cash.app/vparagoncashapp referral (i make 5$): https://cash.app/app/QPL1BJFmonero address: 8576pqM8cmNW92eogjqnYzEewZbmwUbY61xRcGmbVCFphchaXKyAad1Xj9oNrYWQNqZkcm2kCHEzea4Y5Wd3DMUW4DozSV2@mutualaid@a.gup.pe @disability@a.gup.pe @trans@a.gup.pe#mutualaid #mutualaidrequest #donate #donation #fundraiser #crowdfunding #crowdfund #transmutualaid #transcrowdfund #queermutualaid #disabilitymutualaid #emergencycrowdfund #helpfolkslive2025 #begpost
I just saw a video report by a reporter/host who's using a cane and it immediately gets my attention in a positive way. I feel more represented when I see things like this (and I see this more in the UK than I've ever seen it in the US, despite the UK media also being a corporatized mess). #RepresentationMatters @disability
Hey everyone, im here again, i need money to afford my basic necessities as i have no other form of income, i have been living off the last amount of money i had saved up and been living very frugally only spending it on necessities and i have since then depleted it sadly, please donate to help me survive. I live in a transphobic and neglectful home, my family hates me and neglects me bc i am trans, nobody here respects my privacy or my basic autonomy, i need urgent funds to afford my basic necessities, please donate urgently.food: $0/$100misc expenses: $0/$250prescription glasses: $0/$250hrt blood tests: $0/$200cashapp: https://cash.app/vparagoncashapp referral (i make 5$): https://cash.app/app/QPL1BJFmonero address: 8576pqM8cmNW92eogjqnYzEewZbmwUbY61xRcGmbVCFphchaXKyAad1Xj9oNrYWQNqZkcm2kCHEzea4Y5Wd3DMUW4DozSV2@mutualaid@a.gup.pe @disability@a.gup.pe @trans@a.gup.pe#mutualaid #mutualaidrequest #donate #donation #fundraiser #crowdfunding #crowdfund #transmutualaid #transcrowdfund #queermutualaid #disabilitymutualaid #emergencycrowdfund #helpfolkslive2025 #begpost
I'm at the hospital and they're asking me to consider a diagnosis of #fnd. Idk anything about it, should I fight? Is it a bullshit diagnosis? I already have somatic symptom disorder on my chart. Does anyone know articles I can send to my caretaker about FND? I've seen ppl call it bullshit before so I'm inclined to fight but I need more knowledge.
I really ought to start blogging all the different chat show and podcast bits I hear where people talk about ableism without calling it as such and disability without calling it as such.
Is there anyone here who has dealt with instability in the spine and can talk to me about what's that feels like? I've got doctors telling me I don't have it, that (some) of my symptoms are due to something else, a lesion on the spine and I jus don't believe them .
I think my vertebrae are dislocated. Has anyone dealt with that? I get these injuries that get less severe as they bappeb more often but they happen very easy as they happen more often. And I can feel vertebrae clicking in and out.
5 years ago today, on what was then the 30th Anniversary of the Americans With Disabilities Act, UC Access Now released the Demandifesto, calling upon all of the University of California to not only finish meeting the bare minimum of the law, but to exceed it and make UC truly accessible to *all* the public that funds it.
My vertebrae are moving. Like my neck is. They're doing this thing where they click or pop and I get lots of symptoms from it. It can feel like swelling or pinches nerves. I get the feeling there's not enough blood in my brain, burning pain in my fingers, numbness weakness paralysis.
@disability hi! I am desperately in need for help. I need my insulin to bring my blood sugar back down. It’s €300 That’s all I need. I’m not asking for a windfall, just a little help, please.Be blessed 💓
"National Disability is excited to announce the publication of the final report and recommendations for “Crafting a Responsive Community Investment Strategy for People with Disabilities In Northeast Ohio.” This one-year research initiative engaged the Cleveland community in defining pathways to economic progress for people with disabilities in the region. "
@disability hi! I am desperately in need for help. I need my insulin to bring my blood sugar back down. It’s €300 That’s all I need. I’m not asking for a windfall, just a little help, please.Be blessed 💓
Not like I don't already have a jillion things to do, but I was about to toot an off-the-cuff thread about how the conflation of age and disability really supports systemic #Ableism and keeps young abled people in a "savior" position in the cycling world when I realized I really am going to have to think through how to explain this to young abled cycle advocates and for that reason ought to do an actual essay on it. 🫠
None of our usual BSL interpreters are available for my online show a week from now, does anyone have recommendations? Fully remote, particularly suited to chronically ill and LGBTQ+ folks
Albania has been very interesting so far when it comes to ableism, accessibility. A mixture of visibility and invisibility, accessibility and inaccessibility.
@disability hi! I am desperately in need for help. I need my insulin to bring my blood sugar back down. It’s €300 That’s all I need. I’m not asking for a windfall, just a little help, please.Be blessed 💓
So effective and efficient to have your interpretation needs met by several different offices and go through barriers and a decision tree before getting an ASL interpreter!
@disability I was diagnosed with breast cancer and brain Tumor. The medical bills have been rigorous. But I'm rallying for help, funding, prayers to assist me beat cancer and raise $5500 for further bills.
@disability hi! I am desperately in need for help. I need my insulin to bring my blood sugar back down. It’s €300 That’s all I need. I’m not asking for a windfall, just a little help, please.Be blessed 💓
@disability hi! I am desperately in need for help. I need my insulin to bring my blood sugar back down. It’s €300 That’s all I need. I’m not asking for a windfall, just a little help, please.Be blessed 💓
@disability I was diagnosed with breast cancer and brain Tumor. The medical bills have been rigorous. But I'm rallying for help, funding, prayers to assist me beat cancer and raise $5500 for further bills.
@disability Hi I'm desperately need for help I need my insulin to bring my blood sugar back down it's $300 that is all I need, I'm not asking for a windfall just a little help please 🙏🏻 💕
@disability Hi everyone, I'm reaching out for help to raise funds for my daughter's treatments. She was diagnosed with sickle cell disease and recently suffered THREE strokes to the brain. Now, she requires chronic transfusions for her treatment. Please donate and share to support her journey 🙏
I’ve been to The British Library this morning for their audiodescribed art workshop, so much fun! We looked at a very detailed painting by Flemish artist Simon Benning who was working at the start of the 1500s when oil painting techniques were just beginning and the paint was made in the studio. We were all given a tactile diagram produced by a Swell Form machine where the black lines become raised for us to feel. It’s a tricky method as the very complicated painting has to be simplified (e.g. a range of mountains is represented by a thin line and a building in the forground is a much heavier block shape) Our describer Carly talked us through the image from top to bottom and helped us to fill in details in our imagination that she couldn’t include. There was also the opportunity for anyone with useful vision to look at the painting on an iPad and I was delighted to find some Braille on the back of the diagram.This painting is from The Book of Hours and depicts a July day of haymaking, with large trees in the background and several people in the foreground using farming tools. There was also a dog curled up in the sun.After our discussion we then had a go at ‘drawing’ using sculpture wire and I did some kind of stylised leaf shape that didn’t quite work! Some people used pliers and came up with some very intricate designs and others tried covering their wire drawing with tissue paper and glue to add texture. Some of the group then went to the exhibition to see the painting on display but by then I was tired from all the concentrating and was ready to head home. Last time I attended I did some drawings of a papaya on the Swell Form paper so it was exciting to get the finished tactile version back! Some lines were quite light and others very thick, where Id used a paint brush rather than a pen. It is truly wonderful to be able to feel your work, even if it doesn’t always turn out quite how you’d imagined it haha!I’l be back in the autumn for more experiments.#TactileArt #blind #PartiallySighted #Braille #library #audiodescription #Disability @disability
@disability Hi! my 6yr old son is suffering from cancer, she’s yet to start surgery due to lack of funds. I lost my job 2yrs a go I’m single mom and things are really tough on me,I can’t afford her chemo, pls kindly D8T&share my pinned🙏
I’ve just read To Exist as I am, 2025, by Grace Spence Green in a day! She expresses so brilliantly the realities of being a disabled person through her own life changing experience and her career as a doctor. An honest and moving memoir #bookstodon #BookReview #audiobook #Storygraph #disability @bookstodon @disability app.thestorygraph.com/reviews/
@disability I'm a disabled mom so can't work after long breast cancer. I've a spinal cord problem and my blood sugar is high and I'm last to my pen. I urgently need $ 300 for insulin.ANY donation would be hugely appreciate
Please donate, i need money to afford clothing and bills. i need $200 urgently. please help. I live in an abusive and transphobic home, my family hates me because i am trans. i am disabled and unable to get a job. i will literally die without donations. Please donate to me to help me afford my basic necessities like HRT, food, clothing, phone bill, etc. Anything helps please!food: $100/$100misc expenses: $50/$200feminine clothing: $0/$300prescription glasses: $0/$250hrt blood tests: $0/$200cashapp: https://cash.app/vparagongofundme: https://gofund.me/034cef1acashapp referral (i make 5$): https://cash.app/app/QPL1BJFmonero address: 8576pqM8cmNW92eogjqnYzEewZbmwUbY61xRcGmbVCFphchaXKyAad1Xj9oNrYWQNqZkcm2kCHEzea4Y5Wd3DMUW4DozSV2@mutualaid@a.gup.pe @disability@a.gup.pe @trans@a.gup.pe#mutualaid #mutualaidrequest #donate #donation #fundraiser #crowdfunding #crowdfund #transmutualaid #transcrowdfund #queermutualaid #disabilitymutualaid #emergencycrowdfund #helpfolkslive2025 #begpost
The U.S. Department of Energy (DOE) has issued a "direct final rule" that would eliminate the requirement that new buildings constructed with federal funds must be accessible to people with disabilities. This move would weaken the civil rights protections guaranteed by Section 504 of the Rehabilitation Act.
@disability Are you willing to help me get my insulin? I'm down to my last pen and its pretty much close to being empty. Nt asking for much only need $300 rn to save my bloodsugar. please help me with a small donation ,any help can save my life. Please help & Blessings . Thanks.
@disability hi! I am desperately in need for help. I need my insulin to bring my blood sugar back down. It’s €300 That’s all I need. I’m not asking for a windfall, just a little help, please.Be blessed 💓
(Not ME-specific)“A group of people with disabilities who were invited to Leinster House to give training on accessibility ended up ‘trapped’ and ’embarrassed’ after a lift broke down in the building.”
@disability Are you willing to help me get my insulin? I'm down to my last pen and its pretty much close to being empty. Nt asking for much only need $300 rn to save my bloodsugar. please help me with a small donation ,any help can save my life. Please help & Blessings . Thanks.
Feddit.online
Megan Lynch (she/her)
Seraph Valerie
Gwenfar :plantmage6:
UC Access Now
Megan Lynch (she/her)
Tom Kindlon
sickandsesame 🍉
Averixus
Dr Zoyander Street
Irish ME/CFS Association
Sarah Matthews
Journeys In Film
