@BowieSpace@mastodon.social avatar BowieSpace , to random

Chronic illness be like...

ALT
@halcionandon@disabled.social avatar halcionandon , to mutualaid 组

Please help me escape daily from a dark triad (psychiatrist diagnosed). I’m with severe & have endured for 20 years.
I’m at $6151/$10000 to start life again from scratch. Dr fears I will die here if I don’t escape now.



@mutualaid mutualaid@ovo.st icon mutualaid 组
https://chuffed.org/project/161937-help-anna-escape

@halcionandon@aus.social avatar halcionandon , to mutualaid 组

Please help me escape daily from dark triad (psychiatrist diagnosed). I am with & not many options. $6001/$10000 to start life again from scratch. Dr fears I will die here if I don’t escape now.



@mutualaid mutualaid@ovo.st icon mutualaid 组

https://chuffed.org/project/161937-help-anna-escape

@bananamangodog@aus.social avatar bananamangodog , to random

Perhaps the most frustrating thing about having a chronic energy limiting disability is other people's ignorance about chronic energy limiting disabilities.

Every time your self preserving actions, inability to do something, requests for accommodations, skeptical attitudes, or apathy towards my situation occur it diminishes my ability to do things. I'd absolutely be able to do more if everyone else either had a little compassion or would just fuck off alltogether.

@wulfric@beige.party avatar wulfric , to random

Lately, I've felt like someone stole my whole silverware drawer and all I have left is a broken, plastic spork.

@Irenetherogue@beige.party avatar Irenetherogue , to random

Good thing happened to me today:

I got a diagnosis.

Its been 13+ years.
Ive been looking for these answers for 13+ years.

Today, i stop looking and start treatment.

Im not sad about the diagnosis
Im sad that it took 13+ years and being disbelieved, dismissed, belittled and gaslit by so many doctors across all of that time to get to this moment.

Its weird to be this relieved at receiving news that i have an incurable condition

If youre in the hell that is undiagnosed limbo, just know that your suffering is real and its not diagnosis that gives you validity. You deserve answers, and you shouldnt have to fight as hard as i did to get them. Love you 🩷

tranzman77 , to random

hi, thought I'd do an post as I haven't put anything on here in what feels like a lifetime. My name's Blake pronouns he/him. I was born blind meaning I rely on or for all my tech needs. I'm a qualified but don't work due to unrelated to being blind. even though staff see me as a service user I want to set up my own around the link between and disability rights. I have a ton of hobbies and academic interests which would take me over my character limit to list them all lol. 3 interesting facts. 1, I met Timmy Mallet when I was 8 years old. 2, in my late teens I went on the Kilroy chat show where the topic was and met some amazing people on both sides of the coin. 3, I host two quizzes each month on a small server which I find really rewarding. being a player is also just as interesting, going on or would be such fun.

@illmarks@www.illmarks.com avatar illmarks , to random

the figure on the manila anatomical bookmark is against a dark ink background. their body is colored in dark green-blue, with vibrant trans pride flag colors across their body diagonally, the white at their lower abdomen. Their face is drawn in extreme concern. A speech bubble shows them asking, "is there a less invasive option?" a drawing of a disembodied white coat,with jagged edges and allmost glitch-like shaking lines is before them. The white coat also has a speech bubble, and replies, "this is the less invasive option."Symptom: Assigned Female At Birth

https://www.illmarks.com/symptom-assigned-female-at-birth/

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@broadwaybabyto@zeroes.ca avatar broadwaybabyto , to random

Social media generally slows down at the holidays. Why? Because people are celebrating and spending time with their families.

I’m not one of those people.

Why? Because I’m having another Chronic Illness Christmas.

When you’re disabled and chronically ill, the holidays hit different.

They’re lonely. Isolating. Exhausting.

As a result many of us are excluded and left on our own.

When I created The Disabled Ginger I wanted to build a community where everyone felt included.

I wanted to reach across the internet and connect people so they could always have someone to talk to. Someone who understood them. Someone who could make them feel a little less alone.

This Christmas that’s my wish for all of you… that you feel a little less alone.

That you find comfort and joy in the small things, whatever they may be.

If you’re healthy, please remember that not everyone is. That many people are suffering this Christmas and could use a kind word or a bit of love.

Merry Christmas Everyone.

Thank you for spending another year with me.

https://www.disabledginger.com/p/another-chronic-illness-christmas

@broadwaybabyto@zeroes.ca avatar broadwaybabyto , to random

In September I virtually disappeared from social media.

I had a flare up so bad I lost the ability to write.

The fear that I would never recover became all consuming.

The “what ifs” were unrelenting.

It’s taken 3 months to be able to write about it.

My latest is about baselines, flares & how to ask for help:

https://www.disabledginger.com/p/what-if-this-flare-never-ends

@broadwaybabyto@zeroes.ca avatar broadwaybabyto , to random

People think disability is something you can “try harder” your way out of.

They think it’ll never happen to them, or if it does they will overcome.

They refuse to listen to disabled voices.

They refuse to help build better safety nets.

They refuse to care.

It’s a minority group you can join anytime

@aldercone@mastodon.art avatar aldercone , to random

We really need extra help and support this month

Aldercone's havin' a really rough month, about 1/2 of our collective is too ill to work, with new, interesting problems that make some of our work really difficult/impossible.

One way to help is giving to our chuffed campaign for heckimp/PIKA which for us will be basic survival money, but for you is a cool rebranded ! https://chuffed.org/project/157315-fund-aldercone-collectives-heckimp-and-pikapp-projects

:sharesloved:

:cassowary:

@broadwaybabyto@zeroes.ca avatar broadwaybabyto , to random

A resident of Washington State has died from H5N5, a variant of bird flu never before seen in humans.

First known case, first death.

Wear a mask, ideally a well fitted respirator like an N95.

RFK Jr has gutted the CDC.

There’s no plan to deal with another pandemic.

No one is coming to save you.

Masking is an act of resistance and radical community care.

https://www.cnn.com/2025/11/21/health/washington-bird-flu-death

@broadwaybabyto@zeroes.ca avatar broadwaybabyto , to random

Alice Wong helped me accept my disabilities.

She taught me there’s no social justice without disability justice.

She encouraged me to start The Disabled Ginger and was a friend & mentor.

She won’t be forgotten.

Don’t let the bastards grind you down:

https://www.disabledginger.com/p/thank-you-alice-wong

@RareBird15@allovertheplace.ca avatar RareBird15 , to Accessibility

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.

disability@beehaw.org icon Disability and Accessibility @autistics @spoonies @chronicillness Accessibility

@broadwaybabyto@zeroes.ca avatar broadwaybabyto , to random

When you become disabled there’s a few things you notice right away:

Ableism is everywhere.

People will abandon you. Even those you were certain would stick by you.

Just because something is illegal or against human rights code doesn’t mean it’s not happening ALL the time
Accessibility is not what it should be.

People will blame you for your disabilities. It won’t matter what you do or how hard you try, you won’t be “good enough”

All the misconceptions you had about disabled people were wrong.
That’s really the crux of it.

Disability is a minority group you can join anytime.

Most people will experience disability in their lifetime

Yet discriminating against us is not only common it’s socially acceptable.
Most people don’t realize how misguided they are until it happens to them

Many of us living with chronic illness had the same preconceived notions about disabled people until we became disabled ourselves

We thought it wasn’t “that bad”.

We believed we would be the exception
Many of us became advocates because the realization that we were so horribly wrong shook us to our core.

If we had that much ableism to work through, then so does everyone else.

That’s why we need strong allies.

We need people who will say disabled lives matter.
We need to shift the public perception away from the idea that disability is a moral failing.

We need to be visible, take up space and help people realize that all health is temporary and disability happens to almost everyone.

Inclusion and accessibility matter!


@fedicares@blobfox.coffee avatar fedicares , to random

Help Evel!!

https://throne.com/evel
https://cash.app/$evelbrute
https://venmo.com/u/evelbrute
https://patreon.com/wickedflare

Struggling severely indie game dev and graphic designer and their partner are working hard af to keep their disabled queer fam of 4 housed, but they need help!

@RareBird15@allovertheplace.ca avatar RareBird15 , to Blind Main

Just talked with at Colorado Christian University. They’re encouraging me to use instead of for schoolwork, since Word has built-in dictation that could help when my flares up and typing gets hard.

To other folks: how do you remember all of Word’s keyboard shortcuts? I swear I spend more time navigating the ribbon than actually writing. I stick with LaTeX because I can remember commands better than shortcuts.

They said Word’s dictation is accessible, so I’m giving it a shot. But I’m also wondering: what reference managers do you use? I’ve been using since it works with and LaTeX, but I don’t know how well it integrates with Word — and definitely not with . My school has me doing a lot of -style presentations lately.

Would love tips from anyone juggling accessibility, citations, and academic workflows.

mastoblind@a.gup.pe icon mastoblind group @mastoblind Blind Main

@RavynWitch@kind.social avatar RavynWitch , to random

Alright and friends. It is time.
Please hit me with your wheelchair recommendations, avoid list, and things to research.
I think I am interested in a manual active chair with a focus on foldable/portability.
Feel free to boost.

@Uniflame@beige.party avatar Uniflame , to random

I’m currently having a fibromyalgia flare up. Luckily I had something up my sleeve that I didn’t show you yet. Progress on my Raven painting that I made last Friday.

ALT
@aldercone@mastodon.art avatar aldercone , to random
@broadwaybabyto@zeroes.ca avatar broadwaybabyto , to random

Trump is adding a 100% tariff to branded pharmaceuticals made outside the US.

This move could be devastating to the disability community.

It will likely drive costs up and create more supply chain issues at a time when we’re already seeing unprecedented medication shortages

@aldercone@mastodon.art avatar aldercone , to random
@aldercone@mastodon.art avatar aldercone , to random

For just 17 cents a day you can make a HUGE difference for the Aldercones!

If just 1/3 of our followers + 1 of your friends support us monthly, you'll let us rest, pay our bills, & keep making games, community tech, , & for you!

https://comradery.co/aldercone
https://ko-fi.com/aldercone/
https://liberapay.com/heckinTech/
Exclusive doggy posts‽ https://www.patreon.com/wickedflare

aldercone OP ,
@aldercone@mastodon.art avatar

Who will be our newest supporter this month?! Will it be you or You or maybe YOU! :blobcat_amazed:

Support our weird lil led group to let us survive this capitalist hellscape AND keep making , , & for you!

https://comradery.co/aldercone
https://ko-fi.com/aldercone/
https://liberapay.com/heckinTech/
Exclusive doggy posts‽ https://www.patreon.com/wickedflare

@mahtheyzhawey@mastodon.art avatar mahtheyzhawey , to random

September Mutual Aid. 150/2500 for bills, medical, personal care, and October rent due 10 days. If you want to just support a disabled Native artist share or donate. Also have my kofi where I sell my art.
PayPal.me/kiagbear
Cashapp $kiagbear
Venmo kiagbear https://ko-fi.com/mahtheyzhawey/goal?g=0

My ko-fi where I sell my art
https://ko-fi.com/mahtheyzhawey/shop

My link🌲 where I have wishlists for medical stuff and other things.
linktr.ee/mahtheyzhawey

mahtheyzhawey OP ,
@mahtheyzhawey@mastodon.art avatar

716/2500 rent and utilities due tomorrow. Disabled and unable to work a regular job. Selling my art and donations is how I stay safe and housed. Anything helps. ❤️

PayPal.me/kiagbear
Cashapp $kiagbear
Venmo kiagbear

https://ko-fi.com/mahtheyzhawey/shop
https://ko-fi.com/mahtheyzhawey