Social media generally slows down at the holidays. Why? Because people are celebrating and spending time with their families.
I’m not one of those people.
Why? Because I’m having another Chronic Illness Christmas.
When you’re disabled and chronically ill, the holidays hit different.
They’re lonely. Isolating. Exhausting.
As a result many of us are excluded and left on our own.
When I created The Disabled Ginger I wanted to build a community where everyone felt included.
I wanted to reach across the internet and connect people so they could always have someone to talk to. Someone who understood them. Someone who could make them feel a little less alone.
This Christmas that’s my wish for all of you… that you feel a little less alone.
That you find comfort and joy in the small things, whatever they may be.
If you’re healthy, please remember that not everyone is. That many people are suffering this Christmas and could use a kind word or a bit of love.
I could use some community advice. I have multiple sleep disorders: apnea, insomnia, and "social jetlag," where my body disregards the local time and acts as if I belong in a timezone several hours behind the local time no matter what I do. I have treatments for these, including a CPAP and medication to sleep at night and be awake in the day, but even so, I am struggling mightily with the early morning meetings with my new job, to the point that being awake for them is ruining my productivity for the rest of the day.
Added to this, I'm autistic, which makes it hard to communicate my needs effectively, and I had a very bad experience in a previous job when went to HR about it to request an accommodation. (They forced me to take unpaid medical leave rather than allow me to adjust my work schedule slightly, and I had to interact with a very ableist HR person regularly from then on.)
How do I bring this up with my new boss and find a happy compromise that lets me do my job?
Wish me luck over the next few months. I really feel like I’m not going to make it.
My intuition about bad things is usually good (no pun, was that a pun?) & I’ve felt this coming on for about 3 years.
I was meant to take 2 months off at the end of this year but it didn’t happen bc other people didn’t do their jobs. I haven’t found a safe place to live. #NDIS has gone to #AAT before #Christmas which I specifically asked to be done after.
If other people not doing their jobs kills me, I want it known.
Maybe it’s petty, but I will try to keep a list, & that list includes my family for making me miss out on any comforts including my own birthday since March.
It hasn’t ended, there’s no relief now my sister has moved next door.
Last week, someone boosted my piece on ATV "tank track" wheelchairs, written almost 2 years ago. A lot has changed since then, and people always seem to enjoy it, so I thought an update was in order. Where does your state stand?
Last week, someone boosted piece on ATV "tank track" wheelchairs, written almost 2 years ago. A lot has changed since then, and people always seem to enjoy it, so I thought an update was in order. Where does your state stand?