it’s a video.

So he’ll be giving away his wealth then?

What’s the hypothesis?

A lot of the time, if I actually manage to get an appointment, it’s not even with a GP but a nurse, or now they even have paramedics and other similar people doing appointments at the surgery. These have been even worse than the GP. The nurses always say they don’t understand blood test results and have to ask a GP and get back to me, and usually no-one gets back to me and I have to chase them up. When my folate deficiency symptoms started and we had no idea what was causing it, I was first given an appointment with a nurse who said she would ask the GP what to do and get back to me. She never did. Months passed as I waited, always expecting a call and my symptoms got much worse, in the end I kept trying to get an appointment with a GP and eventually got one and they said “Oh it looks like the nurse just forgot to follow it up.”

One time I went with a UTI and was given an appointment with a paramedic. He was extremely unprofessional, made inappropriate sexual remarks, didn’t know which part of the body was affected by a UTI and refused to give me antibiotics so my situation deteriorated. I actually ended up making a complaint about him but nothing came of it.

It’s just utterly impossible to get any adequate treatment at all.

It’s infuriating that I’ve ended up on so many meds I can hardly manage them, and it’s all because of side effects. The cancer meds caused me to have a stroke so now I am prescribed two stroke meds. It also caused food intolerances so i can eat very few foods without getting sick, so I’ve developed deficiencies and been prescribed vitamin injections and pills. One of these vitamins (folic acid) gives me terrible UTIs so I need antibiotics and bladder meds. These also have side effects. These issues have wrecked my skin so now I have eczema (so bad I’ve been hospitalised multiple times when it gets terribly infected), dermatitis and infected foot ulcers. It’s caused chronic migraines so now I take migraine meds which have side effects, and many others.

And with the folic acid, it took seeing multiple doctors before they accepted that the folic acid was causing my UTIs. A simple google search would have shown them that folic acid is known to cause UTIs and other bladder issues but most doctors are too arrogant to even check something they haven’t heard before and just dismissed me. And the latest bladder med they prescribed, in the side effects it lists UTIs, bleeding in urine and bladder pain as side effects! I’ve been begging to see a urologist for ages but they just keep fobbing me off with pills.

We need a revolution, French style or Russian style.

It was a side effect of my cancer treatment. And what really pisses me off is that I wasn’t warned about any of the side effects. I had two options for treatment, radioactive iodine, which they admitted had side effects, or “over treatment” with thyroxine, which means taking a higher than necessary dose of thyroxine for life, to supress any remaining cancer cells and stop it from spreading again. They said this option didn’t have any side effects, so i chose that. Well it turns out it does have many side effects including strokes, heart problems, development of food intolerances, temperature regulation issues, skin problems, mental health issues, exhaustion and brain fog and many other things, all of which I have developed. It can also apparently cause other cancers, that’s the only side effect I haven’t had yet. And of course with all the health problems it’s caused it has also condemned me to a life of poverty and loneliness as I can no longer work or have a social life.

Everything in the UK is about saving a penny now, even if it costs a pound later. Like they’re cancelling 140K operations to save money, never mind the knock-on effects from that. After my stroke they gave me a shitty physiotherapy session every few months so I never recovered, and now I’m disabled for life which costs the NHS more and if I win my claim they’ll have to start paying me disability again instead of fixing me while there was time so I could become a functioning member of society again.

yep.

There’s a lot of speculation that American big business is paying British politicians to destroy the NHS and maker us have private healthcare so the American insurance companies can do big business here.

Thank you. I’m just so used to it by now, and too exhausted to even try and complain any more. Also mental health treatment on the NHS is rubbish anyway. I spent 5 years on the waiting list to get like 8 sessions with an idiot who just told me to draw pictures and meditate.

Thank you but I have totally given up hoping for anything better. It’s such a struggle to get any kind of help in the UK - my disability is worsening over time rather than improving because the NHS is so crap, my physiotherapy sessions are so few and far between. It’s got to the stage that I’ve had two bad falls in the past two months, couldn’t get up, struggle to get dressed and put my own shoes on, my weak left side is always riddled with injuries and inflammation that makes it difficult to walk, my cancer treatment has left me exhausted and with all sorts of problems and I’ll spend the rest of my life constantly being reassessed for benefits and fighting benefit appeals. Nothing will ever get better. But having some sessions with a silly person telling me to write lists and draw pictures is supposed to cure this.

You’re welcome.

I actually tried this myself before I developed a load of food intolerances. I hanged nothing but adding a lot of raw fruit and veg and withing a week the difference in my mental health was like night and day. But then my medication caused me to become intolerant to all fruit and most veg and I had to stop doing it and my mental health plummeted again.

Massage?

A study came out showing that anxiety and other mental health issues can be drastically reduced by eating a lot of raw fruit and veg: https://www.frontiersin.org/journals/psychology/articles/10.3389/fpsyg.2018.00487/full

IME, psychiatry is absolute trash. The only reason I’ve kept going back is because if I’m not in some type of mental health treatment, they use it as another excuse to make me fail my disability benefit assessments/appeals. You would think being in cancer treatment, recovering from a stroke, being partially sighted and all my other physical shit would be enough to qualify for disability benefits, but nope. If I’m not receiving mental health treatment too, I will lose the appeal.

Firstly what is the point? Therapy wouldn’t cure my problems even if it was good therapy. But as it happens, NHS therapy is shit. I’ve been on the waiting list for up to 5 years at a time for treatment, and then I get some shit like DBT, which consisted of a silly little girl just out of college telling me to make lists of why I shouldn’t feel suicidal, depressed and anxious, and whenever I do feel depressed, suicidal and anxious, just read the lists and then I will feel fine! Surprisingly this ground-breaking therapy did not work.

I had one therapy, just after making a suicide attempt, which consisted of an NHS hippie therapist, dressed in long flowing purple robes, telling me to buy a copy of the New Age book The Secret, about the law of attraction, and use it to attract whatever I want into my life. Then I won’t be depressed any more. Again, didn’t work, and is this really suitable therapy for someone who’s just got out of intensive care after a suicide attempt?

My most recent therapist apparently does EDMR, and I asked for that. She refused to give it on the grounds that I’m still in a bad life situation and EDMR is only for people who aren’t in that situation any more. So she spent my sessions doing a shitty guided meditation and making me draw pictures of how I feel each week. Utterly useless trash. Literally just box-checking so she can get her paycheque and I can use the fact I’m in therapy as grounds for my benefit appeal. And when I told her her therapy wasn’t helping me and I wanted to quit, she said (in fear of losing her paycheque) that if I quit she would inform the DWP so I would fail my benefit appeal. I pointed out that that would leave me permanently destitute and I’d end up homeless, and she didn’t care at all. She said she’d just give me a leaflet for a homeless shelter. Just an evil person.

Typical medical staff. Due to food intolerances caused by my cancer treatment, I’ve developed a very bad folate deficiency. It’s causing pins and needles and tingling in my legs and I’ve already lost the use of two toes, it’s spreading. The folic acid they prescribed causes severe UTIs. They tell my “just keep taking it, you need it.” So I kept taking it and the UTI got so bad that I’ve now had multiple extended courses of antibiotics and the UTI still won’t go. I had to stop taking the folic. I can’t sleep at night, need to pee constantly and the folate deficiency is worsening but literally no-one cares, they just say “take the folate and here are some more antibiotics” just over and over again. On top of this antibiotics cause inflamed tendons in susceptible people and they have flared my achilles tendons up again, after all my physiotherapy and shockwave treatment. Why can’t they just legalise assisted suicide already, it’s not like anyone actually cares about us.

Oh yes I see it now, thanks.

is there a way to enlarge this?