At the Edge of the End

On April 1st earlier this year, my body began to change. Lethargy had set in. I had no desire to eat. My lymphatic system was acting strange, as though it didn’t know me. I didn’t feel exuberant about anything. As a matter of fact, I felt deflated, uninspired.

We couldn’t find anything wrong. My lungs, my heart, all fine.
Then after many months of endless scans and tests and a recent 9 day stay in the intensive care unit, (I began throwing up blood) I was given my diagnosis on September 3nd. I have terminal end stage liver failure. I have about 6 months to a year and a half of survival. With the condition of my other organs, it’s quite possible I can get a little more time.

I have been in bed a lot. I’m far too weak to walk on my own, so I use a cane or a walker to get to the bathroom. My abdomen is distended, my eyes have jaundiced, and I’m on so many pills that it feels like I’m back in the hospital. I haven’t had much time to process everything for myself, but asked the hospital chaplain if he would pray for my friends. I am going to need them to be strong for me….and some are handling this better than others.

I am coming to terms with the mistakes I’ve made in the past, but here in the present it seems the most dangerous thing I can do is pretend that nothing is happening, shielding others from the human inevitability: mortality coming quickly, coming suddenly, without much warning.

I promise to write as much as I can for as long as I can, but the pages of this blog will soon wind down to an end. I want to spend the last of my time experiencing the transition into non-physical….once again.

So, in the middle of this mighty silent Sunday, I wanted to reach out and let you know what was happening, what I wish would happen, and what I hope to find when the horizon is met with the loving glow of God.
I love you all and hope to hear from you.

Perfectly Eccentric

Yes, it’s true. My health has not been very well lately. Sucks, doesn’t it?

It is hard to get out of bed somedays. Hard to find the energy to eat. My body shakes when I move. I will go for a walk, trying to get my legs working like they used to. I look like a young gazelle working its long, gangly legs for the first time. (Fun fact: Phillip may be taller than me by three inches, but the inseam on my trousers is longer than his. HA!)