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Direct-to-Consumer Genomics and Research Ethics: Should a More Robust Informed Consent Process Be Included?
American Journal of Bioethics 9 (6):56-58 (2009)
Abstract
An important issue raised in the article by Lee and Crawley (2009) is whether direct-to-consumer (DTC) genomics, specifically personal genome testing (PGT) should be considered research. The author...Author's Profile
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Citations of this work
Direct-to-Consumer Genome-Wide Scans: Astrologicogenomics or Simple Scams?Wayne Hall & Coral Gartner - 2009 - American Journal of Bioethics 9 (6-7):54-56.
Genetic Privacy: Might There Be a Moral Duty to Share One's Genetic Information?Heidi Malm - 2009 - American Journal of Bioethics 9 (6-7):52-54.
Response to Open Peer Commentaries on “Research 2.0: Social Networking and Direct-to-Consumer Personal Genomics”.Sandra Soo-Jin Lee & LaVera Crawley - 2009 - American Journal of Bioethics 9 (6-7):1-3.
References found in this work
Principles of biomedical ethics.Tom L. Beauchamp - 1989 - New York: Oxford University Press. Edited by James F. Childress.
Ethical and regulatory aspects of clinical research: readings and commentary.Ezekiel J. Emanuel (ed.) - 2003 - Baltimore: Johns Hopkins University Press.
Research 2.0: Social Networking and Direct-To-Consumer (DTC) Genomics.Sandra Soo-Jin Lee & LaVera Crawley - 2009 - American Journal of Bioethics 9 (6-7):35-44.
Direct-to-consumer online genetic testing and the four principles: an analysis of the ethical issues.Katherin Wasson, E. David Cook & K. Helzlsouer - 2005 - Ethics and Medicine 22 (2).
Consumer alert: Ethical issues raised by the sale of genetic tests directly to consumers.Katherine Wasson - 2008 - American Journal of Bioethics 8 (6):16 – 18.
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