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An effective multisource informed consent procedure for research and clinical practice: an observational study of patient understanding and awareness of their roles as research stakeholders in a cancer biobank [Book Review]
Silvia Cervo, Jane Rovina, Renato Talamini, Tiziana Perin, Vincenzo Canzonieri, Paolo De Paoli & Agostino Steffan
BMC Medical Ethics 14 (1):30 (2013)
Abstract
Efforts to improve patients’ understanding of their own medical treatments or research in which they are involved are progressing, especially with regard to informed consent procedures. We aimed to design a multisource informed consent procedure that is easily adaptable to both clinical and research applications, and to evaluate its effectiveness in terms of understanding and awareness, even in less educated patients.Other Versions
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Citations of this work
Research participants’ perceptions and views on consent for biobank research: a review of empirical data and ethical analysis.Flavio D’Abramo, Jan Schildmann & Jochen Vollmann - 2015 - BMC Medical Ethics 16 (1):60.
Qualitative study on custodianship of human biological material and data stored in biobanks.Michiel Verlinden, Herman Nys, Nadine Ectors & Isabelle Huys - 2016 - BMC Medical Ethics 17 (1):1-10.
Assessment of knowledge about biobanking among healthcare students and their willingness to donate biospecimens.Leena Merdad, Lama Aldakhil, Rawan Gadi, Mourad Assidi, Salina Y. Saddick, Adel Abuzenadah, Jim Vaught, Abdelbaset Buhmeida & Mohammed H. Al-Qahtani - 2017 - BMC Medical Ethics 18 (1):32.
References found in this work
Building on relationships of trust in biobank research.M. G. Hansson - 2005 - Journal of Medical Ethics 31 (7):415-418.
Biobank research and the right to privacy.Lars Øystein Ursin - 2008 - Theoretical Medicine and Bioethics 29 (4):267-285.
Research understanding, attitude and awareness towards biobanking: a survey among Italian twin participants to a genetic epidemiological study.Virgilia Toccaceli, Corrado Fagnani, Lorenza Nisticò, Cristina D'Ippolito, Lorenzo Giannantonio, Sonia Brescianini & Maria Stazi - 2009 - BMC Medical Ethics 10 (1):4.
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