TUBB3 Foundation
Education and support for families and individuals affected by TUBB3 variants
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Register for the 2026 conference!
Register for the 2026 conference!
TUBB3 Conference An opportunity for connection, education, and inspiration TUBB3 Family Conference The TUBB3 Foundation Family Conference is dedicated to fostering connection, sharing knowledge, and empowering families and individuals affected by TUBB3-related conditions. This event is a unique opportunity for families, caregivers, and advocates to come together, share experiences, and learn from experts in the
2026 Conference Shirts
2026 Conference Shirts
Share Your Story - TUBB3 Foundation
Share Your Story - TUBB3 Foundation
Would you like to share your personal family story about your experience with TUBB3? Fill out our form and send pictures to be included in our stories!
Shop 2026 Awareness Day Shirts
Shop 2026 Awareness Day Shirts
Online ordering for Tubb3 Foundation Fundraiser ends on Wed, Jan 14, 2026 (11:59 PM EST)
TUBB3 Awareness Day Profile Frame
TUBB3 Awareness Day Profile Frame
Let's raise awareness together and invite our friends, families, and community to learn, acknowledge, and support all of our individuals with TUBB3!
TUBB3 Foundation 2026 Conference Sponsorship
TUBB3 Foundation 2026 Conference Sponsorship
By Tubb3 Foundation
TUBB3 Family Connect sign up!
TUBB3 Family Connect sign up!
We are so excited for our TUBB3 Family Connect via Zoom! Come join other families and individuals with TUBB3 variants to share about experiences, and ask questions! Our Next TUBB3 Family Connect will be January 22nd at 7:00 PM Central Time.
TUBB3 Patient Database Enrollment
TUBB3 Patient Database Enrollment
Newsletter sign up
Newsletter sign up
TUBB3 Foundation Email Forms
CamRare Patient Passport
CamRare Patient Passport
Patient Passport - CamRARE (Cambridge Rare Disease Network)
TUBB3 Variant Facebook Group
TUBB3 Variant Facebook Group
Our Website
Our Website
Education and support for families and individuals affected by TUBB3 variants. Our mission is to raise awareness of TUBB3 variants through research and advocacy, and to connect and support individuals and families affected by TUBB3 variants.
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Donate Today!
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