Soft Bones, Inc.

The U.S. Hypophosphatasia Foundation

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About Us

Soft Bones – Hypophosphatasia (HPP) Main Website
Soft Bones – Hypophosphatasia (HPP) Main Website
2026 National Patient Meeting – Registration is Now Open!
2026 National Patient Meeting – Registration is Now Open!
Winter Newsletter
Winter Newsletter
Join HPP AND ME!
Join HPP AND ME!
Download the myHPP App
Download the myHPP App
Shop for a Cause!
Shop for a Cause!

Patient Stories

Patient of the Month- Tamra M.
Patient of the Month- Tamra M.
Caregiver Corner – Lisa W.
Caregiver Corner – Lisa W.
Caregiver Corner
Caregiver Corner

Podcasts

Cannon Unbroken - Podcast
Cannon Unbroken - Podcast
Podcast
·Podcast

Resources

Mental Health Guide for HPP Patients
Mental Health Guide for HPP Patients
Your Best Doctor’s Visit: A Guide for HPP Patients
Your Best Doctor’s Visit: A Guide for HPP Patients
Navigating an Individualized Education Program (IEP) and 504 Plan
Navigating an Individualized Education Program (IEP) and 504 Plan
Hypophosphatasia (HPP): Enhancing Recognition and Treatment Across the Lifespan
Hypophosphatasia (HPP): Enhancing Recognition and Treatment Across the Lifespan
Region Lead Program
Region Lead Program

Ways to Support

Sarris Candies Fundraiser - Now Through March 22nd!
Sarris Candies Fundraiser - Now Through March 22nd!
Soft Bones SpreadShop
Soft Bones SpreadShop
Facebook and Instagram Fundraiser – Soft Bones
Facebook and Instagram Fundraiser – Soft Bones
Pampered Chef
Pampered Chef
Walmart Spark Good Program
Walmart Spark Good Program
Make a Donation
Make a Donation
Get Involved
Get Involved

Upcoming Events

HPP AND ME Zoom Chat on March 18, 2026 at 8 PM Eastern
HPP AND ME Zoom Chat on March 18, 2026 at 8 PM Eastern
RSVP Needed for Next TAC Meeting: March 23, 2026 at 8 PM Eastern
RSVP Needed for Next TAC Meeting: March 23, 2026 at 8 PM Eastern
UK HPP AND ME Zoom Chat on March 24th at 8 PM GMT
UK HPP AND ME Zoom Chat on March 24th at 8 PM GMT
Join Us for a Northeast Region Meeting on Saturday, April 25th at 11 AM Eastern
Join Us for a Northeast Region Meeting on Saturday, April 25th at 11 AM Eastern
Join Us for a Northwest In-Person Region Meeting - May 17, 2026 at 11 AM Pacific Time
Join Us for a Northwest In-Person Region Meeting - May 17, 2026 at 11 AM Pacific Time
18th Golf Classic and 3rd Pickleball Tournament – SAVE THE DATE
18th Golf Classic and 3rd Pickleball Tournament – SAVE THE DATE
Calendar of Events

Programs

Interactive Program Sheet
Interactive Program Sheet
Sign Up for Our Tooth Fairy Pillow Program
Sign Up for Our Tooth Fairy Pillow Program
Youth and Teen Programs
Youth and Teen Programs
Sign up for Hippo Squad!
Sign up for Hippo Squad!

Be Prepared

Traveling with HPP
Traveling with HPP
Emergency Supply Checklist
Emergency Supply Checklist
Emergency Scenario Preparedness Guide
Emergency Scenario Preparedness Guide

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