Soft Bones, Inc.
The U.S. Hypophosphatasia Foundation
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About Us
Soft Bones – Hypophosphatasia (HPP) Main Website
Soft Bones – Hypophosphatasia (HPP) Main Website
2026 National Patient Meeting – Registration is Now Open!
2026 National Patient Meeting – Registration is Now Open!
Winter Newsletter
Winter Newsletter
Join HPP AND ME!
Join HPP AND ME!
Download the myHPP App
Download the myHPP App
Shop for a Cause!
Shop for a Cause!
Patient Stories
Patient of the Month- Tamra M.
Patient of the Month- Tamra M.
Caregiver Corner – Lisa W.
Caregiver Corner – Lisa W.
Caregiver Corner
Caregiver Corner
Podcasts
Bonafide HPP - Podcast
Podcast
·
Podcast
Bonafide HPP - Podcast
Cannon Unbroken - Podcast
Podcast
·
Podcast
Cannon Unbroken - Podcast
Podcast · Cannon Sittig · At just 18 months old, Cannon Sittig, was diagnosed with hypophosphatasia (HPP), a rare metabolic bone disease caused by a genetic mutation. Living with HPP means facing daily challenges most people can’t imagine, but Cannon’s story is far from over. It’s just the beginning.Cannon Unbroken shares powerful, real-life stories of resilience in the face of life’s toughest challenges, especially those related to HPP. Each episode features individuals who have battled personal struggles, adversity, or rare diseases, offering raw and inspiring insights into their journeys.Make sure to tune in!🔔Follow us on Instagram and Facebook, and don’t forget to subscribe wherever you listen!🌐Visit our website: www.SoftBones.org
Resources
Mental Health Guide for HPP Patients
Mental Health Guide for HPP Patients
Your Best Doctor’s Visit: A Guide for HPP Patients
Your Best Doctor’s Visit: A Guide for HPP Patients
Navigating an Individualized Education Program (IEP) and 504 Plan
Navigating an Individualized Education Program (IEP) and 504 Plan
Hypophosphatasia (HPP): Enhancing Recognition and Treatment Across the Lifespan
Hypophosphatasia (HPP): Enhancing Recognition and Treatment Across the Lifespan
Discover cutting-edge insights into hypophosphatasia (HPP)—a lifelong metabolic bone disorder marked by defective mineralization.
Region Lead Program
Region Lead Program
Ways to Support
Sarris Candies Fundraiser - Now Through March 22nd!
Sarris Candies Fundraiser - Now Through March 22nd!
Soft Bones SpreadShop
Soft Bones SpreadShop
World HPP Day 2025? ⭐ World HPP Day 2025 T Shirts ❗ Sandy Soft Bones Key
Facebook and Instagram Fundraiser – Soft Bones
Facebook and Instagram Fundraiser – Soft Bones
Pampered Chef
Pampered Chef
Table By Pampered Chef
Walmart Spark Good Program
Walmart Spark Good Program
Make a Donation
Make a Donation
Get Involved
Get Involved
Upcoming Events
HPP AND ME Zoom Chat on March 18, 2026 at 8 PM Eastern
HPP AND ME Zoom Chat on March 18, 2026 at 8 PM Eastern
RSVP Needed for Next TAC Meeting: March 23, 2026 at 8 PM Eastern
RSVP Needed for Next TAC Meeting: March 23, 2026 at 8 PM Eastern
UK HPP AND ME Zoom Chat on March 24th at 8 PM GMT
UK HPP AND ME Zoom Chat on March 24th at 8 PM GMT
Join Us for a Northeast Region Meeting on Saturday, April 25th at 11 AM Eastern
Join Us for a Northeast Region Meeting on Saturday, April 25th at 11 AM Eastern
Join Us for a Northwest In-Person Region Meeting - May 17, 2026 at 11 AM Pacific Time
Join Us for a Northwest In-Person Region Meeting - May 17, 2026 at 11 AM Pacific Time
18th Golf Classic and 3rd Pickleball Tournament – SAVE THE DATE
18th Golf Classic and 3rd Pickleball Tournament – SAVE THE DATE
Calendar of Events
Calendar of Events
Programs
Interactive Program Sheet
Interactive Program Sheet
Sign Up for Our Tooth Fairy Pillow Program
Sign Up for Our Tooth Fairy Pillow Program
Youth and Teen Programs
Youth and Teen Programs
Sign up for Hippo Squad!
Sign up for Hippo Squad!
Be Prepared
Traveling with HPP
Traveling with HPP
Emergency Supply Checklist
Emergency Supply Checklist
Emergency Scenario Preparedness Guide
Emergency Scenario Preparedness Guide
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