@cysticfibrosisnz
DONATE here 💙
DONATE here 💙
Kirsty Takes Ironman! » Cystic Fibrosis NZ
Kirsty Takes Ironman! » Cystic Fibrosis NZ
Pharmac announces Provisional Agreement to widen access to several life-changing CF medicines!
Pharmac announces Provisional Agreement to widen access to several life-changing CF medicines!
BUY Chocky Fish
BUY Chocky Fish
Chocky Fish are a Kiwi institution, a reward for a job well done! Share them with your friends, family, workmates, take them to a party - everyone deserves a Chocky Fish. Box of 50 individually wrapped fish-shaped, raspberry flavoured marshmallow coated in a smooth milk chocolate. IngredientsSugar, Glucose Syrup, Vege
MEGA MOVING SALE! – Cystic Fibrosis NZ
MEGA MOVING SALE! – Cystic Fibrosis NZ
Help us clear out before we move our office up the road! Everything on sale! Shop our CFNZ Merchandise, all profits go directly towards supporting Kiwis living with the daily challenges that cystic fibrosis can bring. If you buy good, you do good! We have something for everyone, from CFNZ clothing, mugs, our fabulous F
Give the gift of support
Give the gift of support
CFNZ Annual Impact Report 2025
CFNZ Annual Impact Report 2025
Created with the Heyzine flipbook maker
Medsafe grants approval for ALYFTREK: A new era in cystic fibrosis treatment in New Zealand. » Cystic Fibrosis NZ
Medsafe grants approval for ALYFTREK: A new era in cystic fibrosis treatment in New Zealand. » Cystic Fibrosis NZ
FIND OUT MORE - 2025 Christmas Tree Festival
FIND OUT MORE - 2025 Christmas Tree Festival
Sweat for CF - SIGN UP!
Sweat for CF - SIGN UP!
Sweat for Purpose : Make a donation today to support people living with CF.
Healthy eating with cystic fibrosis - CFNZ Guide
Healthy eating with cystic fibrosis - CFNZ Guide
Sweatember 2025 - back to the 80s - playlist by Nikki Purvis Schischka | Spotify
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Sweatember 2025 - back to the 80s - playlist by Nikki Purvis Schischka | Spotify
Playlist · Nikki Purvis Schischka · 61 items · 2 saves
Latest on Trikafta for 2–5 Year Olds: CFNZ Meets with Pharmac » Cystic Fibrosis NZ
Latest on Trikafta for 2–5 Year Olds: CFNZ Meets with Pharmac » Cystic Fibrosis NZ
Get your WINTER WARMERS
Get your WINTER WARMERS
Cystic Fibrosis NZ
Get Chocky Fish to SELL
Get Chocky Fish to SELL
Refer a Friend - Sharing is caring!
Refer a Friend - Sharing is caring!
MAY MERCH MADNESS!
MAY MERCH MADNESS!
Help us clear out before we move our office up the road! Everything on sale! Shop our CFNZ Merchandise, all profits go directly towards supporting Kiwis living with the daily challenges that cystic fibrosis can bring. If you buy good, you do good! We have something for everyone, from CFNZ clothing, mugs, our fabulous F
Air for All
Air for All
Cystic Fibrosis NZ
Medsafe approval for expanded access to Trikafta for Kiwis aged 2 to 5 years old.
Medsafe approval for expanded access to Trikafta for Kiwis aged 2 to 5 years old.
NZ CF Symposium 9-10 May 2025
NZ CF Symposium 9-10 May 2025
APPLY for Cystic Fibrosis Achievers' Awards here
APPLY for Cystic Fibrosis Achievers' Awards here
APPLY for our Mark Ashford Scholarship here
APPLY for our Mark Ashford Scholarship here
Petition for a plan to implement the Rare Disorders Strategy
Petition for a plan to implement the Rare Disorders Strategy
🌺 SHOP NOW
🌺 SHOP NOW
RNZ interview with Ben about running 12 marathons in 12 months
RNZ interview with Ben about running 12 marathons in 12 months
Breakthrough for young Kiwis with cystic fibrosis: Pharmac recommends high priority for Trikafta funding for ages 2-5
Breakthrough for young Kiwis with cystic fibrosis: Pharmac recommends high priority for Trikafta funding for ages 2-5
Be like Harry and donate today
Be like Harry and donate today
SHOP Fred Bear pendant Necklace
SHOP Fred Bear pendant Necklace
Pharmac funding of CGMs and Insulin pumps - summary for our CF community
Pharmac funding of CGMs and Insulin pumps - summary for our CF community
DONATE to the Sweatember campaign here
DONATE to the Sweatember campaign here
Sweat It for CF - Sign up today!
Sweat It for CF - Sign up today!
Think and Be Me - Mental Health and Wellbeing Webinars
Think and Be Me - Mental Health and Wellbeing Webinars
Go PLASTIC FREE this July
Go PLASTIC FREE this July
Register for Think and Be Me Wellbeing Session #4 -
Register for Think and Be Me Wellbeing Session #4 -
Deliberate Kindness Merch
Deliberate Kindness Merch
Go Chocky Fish Crazy
Go Chocky Fish Crazy
Watch the Think and Be Me Session two
Watch the Think and Be Me Session two
Watch the Think and Be Me Session One
Watch the Think and Be Me Session One
‘Our winning Lotto ticket’: Kiwis with life-limiting cystic fibrosis get gift of time
‘Our winning Lotto ticket’: Kiwis with life-limiting cystic fibrosis get gift of time
CFNZ presents Breathe the Ballet
CFNZ presents Breathe the Ballet
Kindness Menu
Kindness Menu
Apply for Breath4CF here
Apply for Breath4CF here
Request Chocky Fish to fundraise for CF Month here
Request Chocky Fish to fundraise for CF Month here
ORDER Chocky Fish to fundraise for CF Month here
ORDER Chocky Fish to fundraise for CF Month here
APPLY here: Cystic Fibrosis Achiever Awards
APPLY here: Cystic Fibrosis Achiever Awards
APPLY here: Mark Ashford Scholarship
APPLY here: Mark Ashford Scholarship
View the Pharmac Tracker for Trikafta for 2-5 year olds
View the Pharmac Tracker for Trikafta for 2-5 year olds
SHOP Gifts for Purpose here
SHOP Gifts for Purpose here
DONATE by purchasing a virtual Christmas Tree here 🎄
DONATE by purchasing a virtual Christmas Tree here 🎄
2023 wrap up - plus support over the break for people with CF
2023 wrap up - plus support over the break for people with CF
Read the CFNZ Board update - December 2023
Read the CFNZ Board update - December 2023
Sweat for Purpose - Sweatember
Sweat for Purpose - Sweatember
DONATE to a SWEATEMBER sweater!
DONATE to a SWEATEMBER sweater!
Sweaty Freddy's Sweatember page!
Sweaty Freddy's Sweatember page!
Lisa Burns: Courageous advocacy should be admired, minister - NZ Herald
Lisa Burns: Courageous advocacy should be admired, minister - NZ Herald
PRE-ORDER NEW Cruel Needs Kind merch here
PRE-ORDER NEW Cruel Needs Kind merch here
Order your copy of: The Adventures of Dusty Dustofferson
Order your copy of: The Adventures of Dusty Dustofferson
SHOP Chocky Fish here!
SHOP Chocky Fish here!
Request chocolate fish to sell here
Request chocolate fish to sell here
SHOP Fred Bear here 🧸
SHOP Fred Bear here 🧸
View and buy Art For Purpose here
View and buy Art For Purpose here
CF community check-in survey - April 2023
CF community check-in survey - April 2023
Pre-order TRI TEAM merch here
Pre-order TRI TEAM merch here
Trikafta - next steps for our community
Trikafta - next steps for our community
Less than a month until Trikafta is available to Kiwis with CF!
Less than a month until Trikafta is available to Kiwis with CF!
Pharmac's Notification about funding Trikafta
Pharmac's Notification about funding Trikafta
Mark Ashford Scholarship - Apply here!
Mark Ashford Scholarship - Apply here!
Cystic Fibrosis Achievers' Award - Apply here!
Cystic Fibrosis Achievers' Award - Apply here!
Trikafta Submission Email Template
Trikafta Submission Email Template
Trikafta submission Guide
Trikafta submission Guide
Read the Summer CF News magazine here
Read the Summer CF News magazine here
Trikafta - It's a Christmas Miracle Drug! CFNZ Art Auction
Trikafta - It's a Christmas Miracle Drug! CFNZ Art Auction
WE DID IT! Read about Trikafta being funded in NZ here
WE DID IT! Read about Trikafta being funded in NZ here
Order your #27MoreYears merch here!
Order your #27MoreYears merch here!
Order advocacy cards here
Order advocacy cards here
Download FREE letter templates to send to MPs here
Download FREE letter templates to send to MPs here
SHOP Gifts for Purpose
SHOP Gifts for Purpose
Sponsor a tree at the Christmas Tree Festival at Wellington Airport
Sponsor a tree at the Christmas Tree Festival at Wellington Airport
Download Trikafta Advocacy Toolkit
Download Trikafta Advocacy Toolkit
Facebook live - Pharmac says it can't progress Trikafta
Facebook live - Pharmac says it can't progress Trikafta
Pharmac says it can't progress Trikafta - media release
Pharmac says it can't progress Trikafta - media release
SIGN UP FOR SWEATEMBER HERE!
SIGN UP FOR SWEATEMBER HERE!
High priority recommendation for widening access to Kalydeco
High priority recommendation for widening access to Kalydeco
JOIN SWEATY FREDDY'S SWEATEMBER TEAM HERE
JOIN SWEATY FREDDY'S SWEATEMBER TEAM HERE
Trikafta update - May PTAC minutes and TAR
Trikafta update - May PTAC minutes and TAR
Trikafta update - Respiratory Advisory Committee excerpt
Trikafta update - Respiratory Advisory Committee excerpt
Options Paper for Feedback
Options Paper for Feedback
Fashion for Purpose - Flaxbloom X CFNZ Pop-Up shop
Fashion for Purpose - Flaxbloom X CFNZ Pop-Up shop
CruelNeedsKind - The CF Appeal
CruelNeedsKind - The CF Appeal
Health Select Committee oral submissions
Health Select Committee oral submissions
Stuff article on Health Select Committee submissions
Stuff article on Health Select Committee submissions
Calling all arty people!
Calling all arty people!
Stuff article with Hamish and Emma - Trikafta
Stuff article with Hamish and Emma - Trikafta
CF Awareness Month - read why we're telling the cold, hard truth
CF Awareness Month - read why we're telling the cold, hard truth
Chocky Fish Fundraiser - order chocolate fish here
Chocky Fish Fundraiser - order chocolate fish here
Bay of Plenty Times / Rotorua Daily Post articles
Bay of Plenty Times / Rotorua Daily Post articles
Setting the record straight - Trikafta facts
Setting the record straight - Trikafta facts
Carmen's Petition Presentation for Trikafta
Carmen's Petition Presentation for Trikafta
Apply for Mark Ashford Schol / CF Achievers' Award here
Apply for Mark Ashford Schol / CF Achievers' Award here
Australia funds Trikafta!
Australia funds Trikafta!
Disappointment over PTAC recommendations
Disappointment over PTAC recommendations
A decade of CF modulators
A decade of CF modulators
CFNZ's Pae Ora (Healthy Futures) Bill submission
CFNZ's Pae Ora (Healthy Futures) Bill submission
CFNZ Clinical Advisory Panel - Omicron advice
CFNZ Clinical Advisory Panel - Omicron advice
Buy Sam Mannering's cookbook, $5 per sale goes to CFNZ
Buy Sam Mannering's cookbook, $5 per sale goes to CFNZ
CF Christmas Appeal
CF Christmas Appeal
Medsafe Consent - another step closer
Medsafe Consent - another step closer
Campaign for Trikafta
Campaign for Trikafta
Ashley's Trikafta Story
Ashley's Trikafta Story
A Trikafta Success Story
A Trikafta Success Story
Major step forward for Trikafta
Major step forward for Trikafta
More info on CF Christmas Tree Festival @ Wellington Airport
More info on CF Christmas Tree Festival @ Wellington Airport
Cystic Fibrosis NZ website
Cystic Fibrosis NZ website
Donate
Donate
Trikafta Petition
Trikafta Petition
Clarity around Trikafta Managed Access
Clarity around Trikafta Managed Access
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