IFCR | CDKL5.COM
Funding research while helping affected individuals & their families to thrive.
Take Action to Support the National Plan for Epilepsy
Take Action to Support the National Plan for Epilepsy
What is a National Plan for Epilepsy and What Would It Do? The Epilepsy Caucus Co-chairs, Senators Eric Schmitt (R-MO) & Amy Klobuchar (D-MN) and Representatives Jim Costa (D-CA-21) & Greg Murphy, MD...
Emerald Study Webinar - Registration
Emerald Study Webinar - Registration
Welcome! You are invited to join a meeting: Praxis: Emerald Study Update. After registering, you will receive a confirmation email about joining the meeting.
Conference Research Opportunities Webinar - Registration
Conference Research Opportunities Webinar - Registration
Please join us to hear from Dr. Massimiliano Bianchi, PhD from Ulysses Neuroscience and Dr. Wendy Gold, PhD from Kids Research to hear information about some of the opportunities to participate in research during the 2026 CDKL5 Family Educational Conference! They will share how the bio sample collection effort will move their work forward. Please register and tune in to learn more!
Easy to Read Summaries in our Blog Post: ELJ-101: Your Guide to the Gene Therapy Webinar Highlights! | International Foundation for CDKL5 Research
Easy to Read Summaries in our Blog Post: ELJ-101: Your Guide to the Gene Therapy Webinar Highlights! | International Foundation for CDKL5 Research
Update on ELJ-101 - A Gene Therapy for CDKL5 Deficiency Disorder (CDD)
Update on ELJ-101 - A Gene Therapy for CDKL5 Deficiency Disorder (CDD)
Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
Take Action to Support the National Plan for Epilepsy
Take Action to Support the National Plan for Epilepsy
What is a National Plan for Epilepsy and What Would It Do? The Epilepsy Caucus Co-chairs, Senators Eric Schmitt (R-MO) & Amy Klobuchar (D-MN) and Representatives Jim Costa (D-CA-21) & Greg Murphy, MD...
Gene Therapy ELJ-101 Webinar Update
Gene Therapy ELJ-101 Webinar Update
"From Science to Hope: Walking the Path towards CDKL5 Gene Therapy", a three-part Webinar Series co-hosted and co-produced by the Global CDKL5 Community
CDKL5 Family Conference 2026 - Register here!
CDKL5 Family Conference 2026 - Register here!
Session topics include education related to common caregiving challenges, therapies and school-based interventions, the latest in CDKL5 clinical care, and updates on the CDKL5 research landscape. Speakers are leading CDKL5 deficiency disorder researchers and clinicians as well as distinguished educators, therapists, and allied health professionals. Of course, there will be opportunities for families to spend time together – arguably the best part!
Our Team | International Foundation for CDKL5 Research
Our Team | International Foundation for CDKL5 Research
Help Our Researchers | International Foundation for CDKL5 Research
Help Our Researchers | International Foundation for CDKL5 Research
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Help Spread CDKL5 Awareness! International Foundation for CDKL5 Research (IFCR) - Our mission is to treat and cure CDKL5 Deficiency Disorder by funding scientific research...
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For Families
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Join "Connect CDKL5" and be part of our community!
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Enroll now! International CDKL5 Disorder Database
Enroll now! International CDKL5 Disorder Database
One of the many reasons for setting up the International CDKL5 Disorder Database was to learn more about this condition.
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Help Get CDKL5 Clinical Trial Ready!
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