Visit our YouTube channel to browse all of our videos. You can also see a collection of video HI-Stories, where individuals and families affected by hyperinsulinism share their experiences; view the HI-Stories playlist here.
Please note: Some of the videos below are available in both English and Spanish; if you are looking for Spanish versions, please scroll down lower on the page, as they follow the full collection of English versions.
Turn Hours into a Lifetime
As part of our participation in the LightCure project, CHI and a creative team from Wolfstreet created our documentary short film: “Turn Hours into a Lifetime.”
The film provides insight into the journeys of three very different hyperinsulinism families from around the world, highlighting the importance of detecting and treating severe hypoglycemia early to prevent brain damage and death.
We are incredibly grateful to the LightCure Grant and the European Union for making this film and partnership possible.
The following 9 videos are from the 2025 Family Conference in Copenhagen:
“The Voice of the Patient – Joint Congress of ESPE and ESE 2025,” with presentations by Julie Raskin, CHI; Henrik Christesen, MD, PhD; Nino Kheladze, MD; Lauren Lopez, PhD; and Sarah Flanagan, PhD.
“The Ukraine – Danish Collaboration,” by Evgenia Globa, MD, PhD, Professor, Leading Researcher, Pediatric and Adult Endocrinologist, Geneticist, Ukraine Research Center of Endocrine Surgery, MoH of Ukraine.
“Complications to hyperinsulinism surgery,” by Gregers Boel, Medical student, Hans Christian Andersen Children’s Hospital, Odense University Hospital.
“Hypothermia therapy for acute insulin-induced brain damage – a rat study,” by Martin Christensen, Medical student, Hans Christian Andersen Children’s Hospital, Odense University Hospital.
“Continuous glucose gastric infusion through portable elastometric pump – an easier life,” Susan Nørregaard, Specialist Nurse, Bispebjerg Hospital, Copenhagen University.
“Somatic genetic mutations in CHI,” by Klaus Brusgaard, PhD, Prof Southern Danish University, Lillebaelt Hospital.
“Scandinavian COE: Odense University Hospital,” Henrik Christesen, MD, PhD, Consultant and Professor, Hans Christian Andersen Children’s Hospital, Odense University Hospital.
“Learning about the Genetic Causes of HI and New Novel Approaches to Uncovering the Genetic Cause of Congenital Hyperinsulinism,” by Klaus Brusgaard, PhD, Prof Southern Danish University, Lillebaelt Hospital.
“Learning from the Past and Planning for the Future,” by Klaus Mohnike, MD, Pediatric Endocrinologist, Professor, Otto-von-Guericke, Universität Magdeburg.
“Compassionate Care for All with Hyperinsulinism,” an interview with Sir Al Aynsley-Green by CHI CEO Julie Raskin.
“The LightCure Project,” a presentatione by Professor Martin Gotthardt at the 2024 CHI Family Conference.
“Your Voice Has Power: How research helps to tell the HI story,” a presentation by Tai Pasquini at the 2024 Congenital HI Family Conference.
“Managing HI in Developing Countries,” a presentation by Dr. Sommayya Aftab at the 2024 Congenital HI Family Conference.
ABCC8 Focal HI
ABCC8 Diazoxide-Unresponsive HI without Pancreatectomy
ABCC8 Non-Diazoxide Responsive with Pancreatectomy
Diazoxide-Responsive Negative Genetics Diffuse HI
Diffuse HI with Diabetes
Diffuse HI with Turner Syndrome
GCK-HI
HI – Unknown Type
HI with Rubenstein-Taybi Syndrome II
HI/HA
Partially Diazoxide-Responsive Negative Genetics Diffuse HI
ABCC8 Diazoxide-Responsive HI
The HI Global Registry
Down and Up. “If your sugar’s low, and your insulin’s high, and you don’t know why, it might be HI!” Share CHI’s original song, “Down and Up,” to raise hyperinsulinism awareness! Written, performed and animated by Janna Pelle, Creative Communications Specialist, CHI
Life Without Lows Song. Written and performed by Janna Pelle, Creative Communications Specialist, CHI
Sugar Soirée 2018 Video
2018 Be My Sugar Award – Marc & Thaïs Stuart
2018 Be My Sugar Award – Isabel Calderón
2018 Be My Sugar Award – Lisa States
Sugar Soirée 2017 Video
“Sugar Baby,” a look into daily life with a young child with hyperinsulinism.
Take a look at what happens behind the scenes of hyperinsulinism genetic testing at Exeter Clinical Laboratory!
This is a video of highlights of our 2016 Paris Family Conference – an incredibly valuable opportunity for parents, children, doctors and researchers to meet together and discuss the latest treatments for hyperinsulinism, and answer individual questions about the many different forms of HI.
By the By Productions has produced a video for CHI to help you learn about hyperinsulinism and the children and families who live with it. The film emphasizes the importance of early diagnosis, research, and support for hyperinsulinism families.
An introduction to the genetics of congenital hyperinsulinism (CHI). This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
Focal congenital hyperinsulinism (CHI). This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
The effects of hypoglycaemia in congenital hyperinsulinism (CHI). This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
Treating Congenital Hyperinsulinism (CHI) with Diazoxide. This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
Emergency Treatment of Congenital Hyperinsulinism (CHI): Glucagon and Dextrose. This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
Treating Congenital Hyperinsulinism (CHI) with Octreotide and Lanreotide. This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
Surgery for Congenital Hyperinsulinism (CHI). This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
The Children’s Hospital of Philadelphia has produced a series of excellent videos on hyperinsulinism (note the link for “Playlist” in the top left to view the whole series).
Ben and his family share their experience of living with congenital hyperinsulinism. This video clip was produced by NORD, the National Organization of Rare Disorders and is part of a Rare Disease Patient Stories series.
[Spanish] An Introduction to the Genetics of Congenital Hyperinsulinism (CHI). Written and produced by Liz Rodgers and Dr. Karen Cosgrove, The University of Manchester. Translation and voice over by Dr. Maria Salomon Estebanez, Congenital Hyperinsulinism Fellow at the University of Manchester.
[Spanish] Focal Congenital Hyperinsulinism (CHI). Written and produced by Liz Rodgers and Dr. Karen Cosgrove, The University of Manchester. Translation and voice over by Dr. Maria Salomon Estebanez, Congenital Hyperinsulinism Fellow at the University of Manchester.
[Spanish] The Effects of Hypoglycaemia in Congenital Hyperinsulinism (CHI). Written and produced by Liz Rodgers and Dr. Karen Cosgrove, The University of Manchester. Translation and voice over by Dr. Maria Salomon Estebanez, Congenital Hyperinsulinism Fellow at the University of Manchester.
[Spanish] Treating Congenital Hyperinsulinism (CHI) with Diazoxide. This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
[Spanish] Emergency Treatment of Congenital Hyperinsulinism (CHI): Glucagon and Dextrose. This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
[Spanish] Treating Congenital Hyperinsulinism (CHI) with Octreotide and Lanreotide. This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
[Spanish] Surgery for Congenital Hyperinsulinism (CHI). This film was written and produced by Karen Cosgrove and Liz Rodgers for The University of Manchester and the Northern Congenital Hyperinsulinism Service in the UK.
